Everything You Want to Know About EA/TEF, But Are Afraid to Ask

by Jan 28, 2015Advocacy, Special Needs Parenting0 comments

January is EA/TEF Awareness month. Today's post marks the occasion by sharing resources and telling our stories of raising kids with the condition.

2015’s EA/TEF Awareness Month is drawing to a close, so this post is the season’s last hurrah. Consider it a filling in of any gaps left by this month’s EA/TEF guest bloggers–Christine, Ami, Jolene, and Maggie–who shared their stories and wisdom gleaned as parents of kids with the same congenital esophageal anomaly – an abnormality none of us had heard of before our children’s diagnoses. And since EA/TEF occurs in only 1 of every 2,500–3,500 births, few people in the general public have heard of it either.

Therefore, today’s EA/TEF Awareness Month wrap up is a collection of links to previous Different Dream EA/TEF posts about the condition–some humorous, some informational, and some that will tug at your heartstrings. Are you ready?

Heartstring Tugger EA/TEF Posts

To start things off, here’s a list of tug-at-your-heartstrings posts written by moms of kids with EA/TEF:

Informational EA/TEF Articles

Now that your emotions are engaged, check out these links filled with informational brain food:

Humorous EA/TEF Pieces

And finally, to leave you laughing, here are some tickle-your-funny-bones offerings:

  • Guest blogger Christine Lester’s humorous series titled You Might Be the Parent of a Child with EA/TEF If…Part One and Part Two were hits with readers when they first appeared in 2011 and still are today.
  • Again, Christine Lester proves to be EA/TEF Comedy Central with Why Christine Lester Almost Missed EA/TEF Awareness Month, Part One and Part Two, which give others a peek into the medical fragility of our kids.
  • Last but not least, Jolene’s top ten signs you’re the parent of an adult child with EA/TEF, all of which ring true to her today.

What EA/TEF Links Would You Add?

Have you written or read a something about EA/TEF that should be added to this collection? Tell about it it and its author in the comment box below. And please leave the link, so others can benefit from it, too. Thanks!

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By Jolene

Jolene Philo is the author of the Different Dream series for parents of kids with special needs. She speaks at parenting and special needs conferences around the country. She’s also the creator and host of the Different Dream website. Sharing Love Abundantly With Special Needs Families: The 5 Love Languages® for Parents Raising Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and at Amazon.

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  1. Something Is Wrong with Your Baby: 5 Things I Wish I'd Known | Different Dream Living - […] day you will meet other parents of children with your baby’s rare diagnosis, EA/TEF, and it will be wonderful. Thanks to…

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Meet Jolene

Jolene Philo is a published author, speaker, wife, and mother of a son with special needs.

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