Here are 5 things I wish someone had said when the doctor sat by my hospital bed and said, "Something is wrong with your baby."

Something is wrong with your baby. I remember, as though it happened yesterday and not in 1982, the day our doctor sat down beside my hospital bed and uttered those words. Something is wrong with your baby.

I reach through the decades at the young mother and wish I could go back in time and sit beside her. I wish I could tell her what we learned between then and now about raising the baby we both love. I wish I could calm her anxiety with these 5 nuggets of wisdom our baby taught us through the years.

  1. One day you will meet other parents of children with your baby’s rare diagnosis, EA/TEF, and it will be wonderful. Thanks to the internet, which will come into its own when our son is in his 20s, you will meet families who understand the challenges of caring for your baby. They will validate your hunches and applaud your advocacy on behalf of your son.
  2. You are the expert about how your baby’s condition is manifested in your child.Surgeons and pediatricians will know more about the condition your child has. But you know more about your child than the professionals do. Therefore, your expertise is equal to that of the professionals, and you deserve to be heard. When you find a doctor, a therapist, a nurse, or a caregiver who treats you as such, rejoice and make them part of your child’s care team. They are golden.

To read the rest of Something Is Wrong with Your Baby, visit the Patheos website.

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