by Karen Jackson | Jul 6, 2017 | Advocacy, Self-Care and Stress, Special Needs Parenting
Accepting Help and Letting Go: The Dilemma of a Special Needs Parent Accepting help and letting go are hard pills for parents of kids with special needs to swallow. As her daughter nears her 20th birthday, guest blogger Karen Jackson reflects upon what she’s...
by Jolene | Jun 26, 2017 | Advocacy, How-Tos, Special Needs Parenting
How to Raise a Health Care Self-Advocate Once upon a time, my husband and I were our son’s sole health care advocates. For the first 4 years of his life, we faced numerous life and death decisions concerning surgeries, medical tests, and treatment. After those...
by Jolene | Mar 16, 2017 | Advocacy, Special Needs Parenting
IEP Tips from Parents for Parents A few weeks ago, I attended the Engage Conference sponsored by 99 Balloons. One of the workshop sessions was a panel discussion called Navigating the IEP. The panel consisted of 2 parents of kids with IEPs and 1 educator who often...
by Jolene | Jan 19, 2017 | Advocacy, Special Needs Parenting
5 Ways EA TEF Treatment Has Changed & 5 Ways It’s the Same My son was diagnosed with EA TEF a few hours after his birth. I’d never heard of the condition before May 23, 1982. In the years since then, I’ve thought about it every single day. In...
by Nanette Lerner | Jan 18, 2017 | Advocacy, Special Needs Parenting
6 EA TEF Warnings Hidden from New Parents EA TEF Awareness Month is all about educating the masses about a rare and life-threatening birth anomaly. Today guest blogger and mom, Nanette Lerner educates new parents regarding 6 EA TEF warnings hidden by the well-meaning...
by Maheen Tarver | Jan 12, 2017 | Advocacy, Special Needs Parenting
Our EA TEF Adventure: A Journey with Our Son EA TEF adventure abounds when kids are born with this life-threatening birth anomaly. Guest blogger Maheen Tarver shares her family’s EA TEF adventure in this post in honor of EA TEF Awareness Month. Our EA/TEF...
