About a month ago, a blog entry about the Special Needs Underground was posted at DifferentDream.com. The concept was originally introduced by Tammy, a tracheostomy parent who blogs about caring for her son at www.PrayingforParker.com.
Tracheostomy Parent Support Site
The post garnered several comments, including one that mentioned a site for tracheostomy parents. If your child has a trach tube, www.tracheostomy.com is a page you’ll want to explore. It is loaded with good stuff. Be sure to pull down on “Networking” near the top of the page and go to the TrachKids.org link where you will meet parents and kids living with trach care and trach tubes.
Meet Aaron Bissell
At www.tracheostomy.com, you’ll also meet Aaron Bissell. He was born in 1994 and had a trach tube for the first four years of his life. He and his brother Eric, who deals with cerebral palsy, were preemie twins. Their experiences prompted Aaron’s mom, Cindy, to start the website as a support for parents.
Other Trach Sites?
If you know of other tracheostomy parent sites that offer resources, networking support, or education for parents, please leave a comment. Or leave a note about what life is like for your child and family. Your story may be an encouragement to many other parents!
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just thought i’d leave a link to my blog on here. my son rowan is a former 26-week preemie who is now almost 8 months old and is on a home vent. i just found this website. pretty cool stuff!
http://rowanjames.blogspot.com/
Pass it on to others, Lynette – parents, hospital workers, anyone who could get the word out. It’s such a valuable resource for parents.
Jolene
thanks for sharing this! i wish i had had this info when jocy came home on a vent and with a trach 3 years ago! i shared this website with the vent team at u of m and posted to facebook, as i have a few friends with kids on vents.
what wonderful and helpful information for famillies!
have a great day!
Hi Cindy,
You’re welcome, Cindy. I’ll add your site to my blog roll as well.
Jolene
Dear Jolene, Thank you so much for your kind words about Aaron’s Tracheostomy Page. Thanks also for your website. I will add your blog to my “blog-roll”
Sincerely,
Cindy Bissell