Of course not, you may have thought to yourself after reading the title of this post. My special needs mom worries never end either.
But there’s a difference between your special needs mom worries and mine. You are most likely either raising a child with special needs under the age of 18 or caring for an adult child with special needs. In either case, you deal with a host of legitimate concerns every day.
I, on the other hand, do not. My son was born with a rare condition known as esophageal atresia with tracheoesophageal fistula (EA/TEF). I had plenty to worry about during his first 4 years until a series of surgeries and procedures fixed what ailed him. Many children born with EA/TEF have other physical disabilities or developmental delays. Our son does not. He’s a college graduate with a job, wife, a family, and a farm. Did I mention he was born in 1982, which makes him 36 at the time this post was written? Even so, my special needs mom worries never end. Here’s a frank look at what I worry about.
- Esophageal cancer. People with EA/TEF often have re-occuring issues with gastroesophageal reflux disease (GERD), a condition that can lead to esophageal cancer. I combat this reality by thanking God for the years our son has lived, when in another day and age he would have died at birth.
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