Staying connected to the real world can be a challenge for caregivers, whether the loved one being cared for is a new baby, a child with special needs, a disabled spouse, or an elderly parent. I’ve been primary caregiver in all those relationships and know the effort required to avoid becoming isolated. Along the way, other caregivers have shared their top strategies for staying connected to the real world. Five of those strategies can be found in a previous post, and I’m passing along the final five below.
Strategy #6: Go to the Park
We moved to a new town a few years ago, and I discovered a good way to meet people is to take my young grandson to the park. It’s easy to strike up a conversation with grandparents or parents while pushing a swing or keeping an eye on kids. Our small central Iowa town has several parks with accessible playground equipment. You can research what’s available in your area by calling the local parks department. If your community lacks accessible parks, your phone call proves the need for them and could be a catalyst for change.
Strategy #7: Partner with Teachers
When I taught school, many of my students had special needs: physical disabilities, illnesses like diabetes, behavioral issues, and learning disabilities. I discovered that by partnering with parents of kids with special needs early in the school year, we could teach typical kids about their classmate’s special needs and how to interact so the child was usually embraced and included at school. If I didn’t do so, the typical kids came up with their own explanations about their classmate, and it usually wasn’t good. Rather than go into detail in this post about how parents and teachers can partner, I promise to do it later.
Strategy #8: Join a Real World Support Group
Online support groups are great, and I belong so several. But connecting with the real world requires real world connections rather than virtual ones. Parents of kids with rare conditions may not find a local group dedicated solely to a specific diagnosis, but they can usually find one for parents of kids with any type of special needs. To find a group, check with a social worker or child life specialist at a children’s hospital in your area. Or call a church in your area with a special needs ministry. Many of them sponsor ecumenical support groups for parents. You might also check with the special education coordinator in your school district. Finally, this blog post explains how the mom of a child with a rare medical condition created her own local support group with help from her son’s doctor.
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