10 Friends All Special Needs Parents Want
Today, Different Dream introduces guest blogger and Deborah Arrona. She’s mom to Aria, her daughter who has significant special needs because of premature birrth. Deborah and Different Dream’s Jolene Philo have been friends for many years. So it’s fitting that Deborah is here with a post about the kinds of friends parents of kids with special needs want.
10 Friends All Special Needs Parents Want
by Deborah Arrona
Back in November Jolene shared an article from The Washington Post on the Facebook page, A Different Dream for My Child. The article, titled 10 Types of Friends That Every Mom Needs by Samantha Rodman, suggests 10 types of friends any mom would benefit from having in her life. Jolene asked what kind of friends we, as special needs parents, would add to this list and after I commented I was asked to take my suggestions and turn them into this guest post you are reading now. This is my list of 10 types of friends any parent of a child living with special needs or would benefit from having in their life.
The Friend With An Older Special Needs Child
This friend has been on this journey of being a special needs parent a little longer or a lot longer than you have. The experience and wisdom this friend has is priceless. Whether it’s a new diagnosis, surgery, medication, doctor or what have you this friend will be very encouraging and can offer understanding, something a lot of other friends may not be able to do.
The Friend With A Younger Special Needs Child
All that wisdom and experience the afore-mentioned friend pours into you can be paid forward to this friend. This friend will be looking for support, answers and more…like you were. You will become the first friend mentioned to this person. This is another time among many when looking back on this journey will reveal how much it is truly is worth it.
The Friend With Kids That Do Not Have Special Needs Or No Kids
This friend has either no children or a child(ren) who’s not diagnosed with any medical issues and doesn’t seem to care that your child lives with medical issues. This friend genuinely likes you and wants to be your friend and is willing to embrace all that comes with your friendship–like your family and the special need your child lives with. If this friend has children living without special needs it’s a great chance for some socialized inclusion benefiting their kids and yours. If this friend doesn’t have kids they can treat yours like their own niece/nephew if not their own son/daughter…point is they will love and support you and your child because of your friendship.
The Friend With Kids Who Like Your Special Needs Child
This friend may be one you‘d be more acquainted with than friendly in other circumstances. You may have different views on parenting, politics, eating habits and more. However, this friendship is beneficial because it’s birthed out of a desire of their kids to be friends with your child living with special needs. Their kids will go out of their way to talk with, play with, read with, watch movies with and more with your special needs child. That will mean more than how you feel about organic foods or some other topic you may disagree with this friend. The best part is that this friend knows that too and that helps you both build a friendship. Talk about a win-win.
The Special-Ed/Resource Friend
Whether it’s whipping out a business card or googling with lightning speed keywords you mentioned in conversation, this friend always seems to have the name, phone number, website and any other information you happen to need on the fly. This person may also happen to be well versed in Special Education either as a parent like the first friend mentioned or as a person working in Special Education themselves. When you need help or encouragement for ARDs, IEPs, 504s and more, these are friends you want to have as their expertise will be very helpful.
The MacGyver Friend
This friend will adapt, modify, or build their own version of durable medical equipment, complete home modifications, and more when it’s too expensive to purchase what your child with special needs could use. This friend will help you get or build what you need for your child because they understand and do the same for their own child.
The Hand-Me-Down Friend
Clothes, toys, equipment, medical supplies and more, once outgrown and no longer used, are what this friend has to offer…along with friendship. Visits include receiving and/or swapping items your special needs child could benefit from. This friend provides a means to try before you buy, so you can keep more money in your bank for things like medicines and groceries. This friend’s example affords you another opportunity to pay it forward someday.
The Respite Friend
Just when you feel like you are running on empty this friend will be there for you. This friend shows up at the right time, or is already visiting and sees you need a break. What could you possibly do with a break and a respite friend willing to watch your child living with special needs? How about do some chores, run errands, take a nap, take a shower, read a few chapters in a book, buy groceries, or eat a meal? The possibilities are endless with this friend providing the gift of extra time.
The Follow-Through Friend
Having friends is great, but having friends you can count on is even better. I’ll pray for you or Call me if you need anything are not just cliché phrases this friend dishes out because it’s polite. They say it because they mean it. When you call them for something, they do their best to make it happen. When you ask for prayer they actually do it. This journey of parenting a child living with special needs can be full of let-downs as often, if not more than, victories. Having a follow-through friend can make let downs feel a bit more victorious just because of their faithfulness.
The Friend Who Knew You Before You Were a Special Needs Parent
If we are honest, becoming a parent changes us. However, add special needs into the mix, and we change even more. Having a friend that knew us before we started this journey will help us take care of ourselves. We, as parents, all too often can neglect ourselves while we care for our children living with special needs. Often, we are not able to keep friendships from before, but keep them if you can. It is possible to make new friends who will help you take care of yourself. Be that as it may, a friend that knew you before the life-altering, special needs parenting can encourage you to be the real you instead of parent or a spouse now and then. This friend can help you maintain or discover new hobbies and talents and just provide an emotional or creative outlet.
What Friends Would You Add to the List?
Those are the types of friends I think every special needs parent should want or could benefit from having in their life. One person can encompass one or several of these types, but that’s not important. What is important is that friendship should be put on your to-do list. Just like your child’s feeding schedule or other important daily routines you do for your child living with special needs. Are there any other friends you would list?
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By Deborah Arrona
Deborah Arrona is a stay-at-home mom to Aria, a sweet and beautiful tweenage, 25 week micro-preemie survivor. Aria loves music and rolling in her wheelchair outside. She lives with multiple, medically complex special needs such as Periventricular Leukomalacia, Cerebral Palsy, Epilepsy, Cortical Visual Impairment, and use of a feeding tube. Deborah and her husband, Salvador, are raising Aria together in the Houston area. When Deborah has time she enjoys singing, reading, movies, music and posting updates about Aria at Facebook.com/TeamAriaArrona.
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That is wonderful, Mary. Know that you are making a huge difference for many parents by sharing your wisdom.
That is wonderful, Mary. Know that you are making a huge difference for many parents by sharing your wisdom.
Great list! I am now filling the first role on your list, the friend with older special needs kids. I love being able to answer questions or just help a parents know they aren’t alone in the journey.
Great list! I am now filling the first role on your list, the friend with older special needs kids. I love being able to answer questions or just help a parents know they aren’t alone in the journey.
In wish I had a few of those friends! Somehow I have become the friend with the older special needs kids! When did that happen? Thanks for sharing over at Faith, Hope, and Love!
In wish I had a few of those friends! Somehow I have become the friend with the older special needs kids! When did that happen? Thanks for sharing over at Faith, Hope, and Love!
This is such a wonderful list! I was giggling my way through it as friends names popped into my head because they are exactly as you described!
This is such a wonderful list! I was giggling my way through it as friends names popped into my head because they are exactly as you described!
Beth,
Deborah did a wonderful job with the post, didn’t she? I’m so glad her words helped you pinpoint those friends in your life and moved you to pray to become that sort of friend in the future!
Jolene
Beth,
Deborah did a wonderful job with the post, didn’t she? I’m so glad her words helped you pinpoint those friends in your life and moved you to pray to become that sort of friend in the future!
Jolene
I loved reading this so much because as I read through it, I was thinking, “oh that is…” And I also realized that some friends overlap in the categories and fill more than one role in mine. I pray that I fill some of those roles for them. Thank you for sharing such a great post!
I loved reading this so much because as I read through it, I was thinking, “oh that is…” And I also realized that some friends overlap in the categories and fill more than one role in mine. I pray that I fill some of those roles for them. Thank you for sharing such a great post!