The One in One Hundred Child

The One in One Hundred Child

Valentine’s Day is an opportunity to remember the one in one hundred child born with a heart defect. In her heartfelt poem, guest blogger Stephanie Husted profiles some of the one in one children born with heart disease and the families who are their advocates....
Our Bittersweet EA/TEF Symphony

Our Bittersweet EA/TEF Symphony

A bittersweet EA/TEF symphony. That’s how guest blogger Janae Copeland describes the life of her daughter who was born with EA/TEF in 2010. In today’s post, Janae explains how she learned to read the music of her daughter’s life. What a fitting and...