EA TEF Reassurance for Your Best and Worst Days
A little EA TEF reassurance goes a long way for parents of babies who have just received this life-threatening diagnosis. Posts by proud new daddy Matt Allen and equally proud new mommy Maheen Tarver offer encouragement. Today the mother of a son born with EA TEF in 1982, offers the EA TEF reassurance every parent needs now and then.
EA TEF Reassurance for Your Best and Worst Days
The day our son was born, my husband and I were told he had EA TEF.
The doctor said our firstborn needed to be sent 750 miles away for life-saving surgery.
It was the best day of our young lives.
It was the worst day of our young lives.
Our baby spent 3 weeks in NICU recovering from surgery.
On the bad days, he suffered complications.
On the good days, he made progress.
On the best day, we took him home.
Over the decades, our son had more best days and more worst days.
Complications and progress.
Physical set backs and improved treatments.
PTSD and successful therapy.
Looking back, I can tell parents this.
Your tears will become less frequent, though they will never be far away.
Best days will become precious treasures.
Worst days will still come.
The good days will give you hope.
The bad days will make you fierce and strong.
Every day will make you thankful for being a parent.
Even if those days are few, and your child slips away too soon.
Whether this is the best day or the worst, I can assure you of this:
Your pain can become purpose.
Your tears can be transformed.
Even death can hold the promise of eternal life.
Good days can become joyful memories.
Bad days can hold sweet sorrow.
The worst day can cause you to search for purpose in suffering.
The best day can come when your search ends in Christ who suffered too.
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By Jolene
Jolene Philo is the author of the Different Dream series for parents of kids with special needs. She speaks at parenting and special needs conferences around the country. She’s also the creator and host of the Different Dream website. Sharing Love Abundantly With Special Needs Families: The 5 Love Languages® for Parents Raising Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and at Amazon.
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