For Better, For Worse in Special Needs Parenting

by Oct 24, 2019Books and Resources, Special Needs Parenting9 comments

For better, for worse. Today’s guest bloggers, Joe and Cindi Ferrini, have been learning what those words mean for their family for more than 4 decades. In their new book, Love All-Ways: Embracing Marriage Together on the Special Needs Journeythey share what they’ve learned. Today’s guest post us an excerpt from their new book. 

For Better, for Worse

Within a ten year period we lost 5 close family members (one to suicide), was in the process of helping one daughter plan a wedding, getting our other daughter ready for high school graduation, all while I was losing clumps of hair leaving me with huge bald spots, and us trying to continue to meet the needs of our son with multiple special needs. Some of you are saying, “Wow, that’s nothing, here’s my story!” Others are saying, “I sure hope that doesn’t happen to me!” Either way, we all will have hard times amongst the good and there will be challenges. Times got better and life got a little easier, but we aren’t going to lie: it was tough.

Things we learned and hope to help you in your challenges:

  • Don’t be afraid of bad news. Psalm 112:7-8, “They will have no fear of bad news; their hearts are steadfast, trusting in the Lord. Their hearts are secure, they will have no fear; in the end they will look in triumph on their foes.”
  • Trust in God no matter what the news. Genesis 22:1, “They will have no fear of bad news; their hearts are steadfast, trusting in the Lord. Their hearts are secure, they will have no fear; in the end they will look in triumph on their foes.”
  • Trust Him to provide: Philippians 4:19, “And my God will meet all your needs according to the riches of his glory in Christ Jesus.” Matthew 6:33, “But seek first his kingdom and his righteousness, and all these things will be given to you as well.”
  • The root of many problems and challenges is that they are unexpected and if not managed and dealt with will mature into bitterness and often anger.
  • Unrealistic expectations and inevitable difficulties are normal. It’s what we do with them that will make the difference in our marriage.

It’s amazing to see that what we were given in life is the very template of who we will become. Caring for Joey has helped our whole family realize different things in life but as a couple it showed we’d be there for each other “for better, for worse” when that time comes. It was also good that it came early in our marriage giving us the opportunity to recognize selfishness in ourselves giving us the ability to ask God for help to see the bigger picture beyond just “me or us” and to share and serve. Good that comes from right choices was such a great story line in the movie Wonder (2017). It’s a lifetime of right choices, timing, and responding that finally tells the story of life and gives us the ending. In some ways we think we get to write, in part, how that ending turns out. What we find is that positive character traits will get us farther than negative ones and negative emotions. Don’t be entitled; be grateful. Recognize that both valleys and vistas have their own beauty. Life is not social media. Social media isn’t all that real in many ways; but fun, yes.

  • Embrace joy. Give life gusto. Keep trying, doing, enjoying different adventurous things. (Try new hobbies even if you’re lousy at them. We took dance lessons and had fun. We took golf lessons and are still lousy, but we had fun!)
  • Practice God’s presence and ask for the Holy Spirit to fill you.
  • Make friends.
  • Ask for help when you needed and before you need it!
  • Financial planning for you and your child will help eliminate some stress.

Be:

  • Winsome (fun)
  • Wise (Not a windbag!)
  • Wide awake (pay attention to each other)
  • Wishful (hopeful for the future)
  • Stop moving the bar you set for yourself and for your spouse. Are you moving it so neither of you will ever attain it? Stop expecting too much. But expect what is right.
  • Get counseling if you need to work through some things and need the help. Make sure they’ll keep it confidential and private.
  • Find a mentor couple that’s made it through the present stage you’re at.
  • The hardest challenges have changed us the most for the better.
  • Accept, affirm, and appreciate each other “as is” and always act with good intentions and affection.

When worse overshadows better, there is no shame in finding a mentor couple or seeking counseling. Let us help you work through your needs and give you some direction in Love All-Ways: Embracing Marriage Together on the Special Needs Journey. There is no harm in getting help. We all need it from time to time!

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By Joe and Cindi Ferrini

Dr. Joe and Cindi Ferrini share their newest book, Love All-Ways: Embracing Marriage Together on the Special Needs Journey. They are authors, speakers, and bloggers on marriage, family and special needs. They speak nationally for FamilyLife Weekend To Remember Marriage Get-a-Ways, authored Unexpected Journey – When Special Needs Change our Course, and have been interviewed on Focus on the Family, FamilyLife, and various other radio and television venues. Connect with them at their website and on Facebook at Cindi Ferrini, My Marriage Matters, and Unexpected Journey.

9 Comments

  1. Deb

    We have been searching for a resource such as this. Thank you for writing it.

  2. Jayne Gautreau

    Our oldest son who is 16 has autism and while we partner well there are often differences in how we both process our sons diagnosis. Would love to read this book

  3. Pamela Marshall

    Our son is 9. He has PBD-ZSD, a rare life-limiting genetic disease that causes severe disabilities and is typically fatal in childhood.

    I’d love to read your new book.

  4. Brandy

    We have a 9 year old son with cerebral palsy and our marriage could use this book! It sounds like a great book!

  5. Jen

    My husband is our sole provider and I care for our son who is autistic and has multiple special needs and our two daughters. Recently, I had a cancerous tumor removed which left me with nerve damage and an inability to speak because of it. I would say we are currently undergoing the biggest test our marriage has ever faced in seventeen years. We are trying to adjust to a new normal together and firmly believe God has a bigger plan for each one of us. I’ve honestly never been more in love with my husband than I am today. I will definitely be reading this book.

  6. Natasha Cambe

    This is amazing. Definitely on my need to get book list. I am a special needs mom and I lead a special needs moms support group at our church.

  7. Rachel Olstad

    Is love to read this book!

  8. Samantha DaRocha

    We have a son with Cerebral palsy. I would love to read this book!

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Jolene Philo is a published author, speaker, wife, and mother of a son with special needs.

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