Where Special Needs and Easter Meet
Where Special Needs and Easter Meet
Some of my earliest memories are anchored in the sensations that accompanied our family’s Easter observances. Scratchy petticoats under new spring dresses. Bonnet straps tied too tight under the chin. The tickling ruffles of white anklets and toes crammed into shiny new Mary Janes. The smell of ammonia rising from Dad’s urinal zipped into the black leather bag tucked under the pew. Dad, not sitting beside his family, but behind us in his wheelchair.
I would steal looks at Dad during the sermons. More than 50 years later, I can close my eyes and see his expression as he listened to the pastor. That memory brings me to tears–and yes, I am crying while writing these words–because his expression is not joyful or hopeful. It is resigned. It is sad. Even sorrowful.
After the service, his expression always changed. Eyes twinkling, Dad would position his wheelchair in the middle of things. He greeted every person who passed by, shaking hands, sharing stories, wishing them a happy Easter, refusing to leave until the crowd dispersed, and Mom was fretting about the ham burning in the oven. Dad’s good mood lasted through Easter dinner with our relatives, the egg hunt with our cousins, and the card games that followed. But after the company left and Mom shooed us to bed, the sadness and resignation settled around my father once again.
When I was a little older, we attended Maundy Thursday services, and I sat up straight when the pastor read from Isaiah 53.
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By Jolene
Jolene Philo is the author of the Different Dream series for parents of kids with special needs. She speaks at parenting and special needs conferences around the country. She’s also the creator and host of the Different Dream website. Sharing Love Abundantly With Special Needs Families: The 5 Love Languages® for Parents Raising Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and at Amazon.
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