Autism: One Family’s Unexpected Journey
An autism diagnosis for daughter Kylie was guest blogger Amy Stout’s first step on her family’s unexpected parenting journey. A recent date with husband Dan to the movies left Amy feeling a deep connection with the title of the first Hobbit movie…An Unexpected Journey.
An Unexpected Journey
Eleanor Roosevelt once said:
The purpose of Life is to live it, to taste, experience to the utmost, to reach out eagerly and without fear for newer and richer experience.
An Unexpected Connection
My family has learned what Eleanor Roosevelt meant by that beautiful and inspiring morsel of knowledge. Last night, my husband took me on an “alone” date to watch the movie The Hobbit. At the beginning of the movie, the words An Unexpected Journey scrolled across the screen. I instantly connected with those words on such a deep level that I was barely able to watch the rest of the movie!
My mind kept rejoicing that I had finally discovered the pivotal phrase that frames up what our life has become: An Unexpected Journey. I then began to clearly play back expectations that I had brought with me into various life seasons and how the unexpected had altered them in ways I was unable to clearly recognize.
How, at the time, I felt as though I could barely breathe—as though I were drowning.
I would surely live but not emerge untouched.
Unexpected Truth
Oliver Wendell Holmes, Jr once said:
A mind that is stretched by a new experience can never go back to its old dimensions.
I have found this wisdom to be true.
I also found that the less I fought these ripples, the less painful and consuming they were. In fact, I found that if I opened my arms and, dare I say it out loud, embraced them, I eventually learned to enjoy the unfamiliar and most unexpected journey.
The fabric of my once perfectly ironed life transformed into something much more valuable. More reminiscent of a quilt carefully gifted from generation to generation with priceless fragments of moments and lessons—a story that is a treasure when imparted.
Unexpected Adventure
I began to hold on less and less. I loosened my grip and began to raise my eyes to see what was happening around me. I actually invited others to join me!! The experience was no longer overwhelming, it was an adventure. I was actually excited to see what came next!
It was then that my family made the decision to commit to this mindset. We did not “have” Autism. Autism would not consume us. Autism did not make us “less.” Instead, as a family, we would Experience Autism.
Anytime I am asked to describe Kylie’s diagnosis, I simply write that she experiences Autism. When asked about our family situation, I tell them that we experience Autism.
To some it is just a word, but to us it is much MUCH more! We are experiencing life—even Autism—together, as a unit, and it is an adventure: a very wonderful, unexpected journey!!
A few more kernels of wisdom that we draw inspiration from…
The only source of knowledge is experience ~ Albert Einstein
Nothing is a waste of time if you use the experience wisely ~ Auguste Rodin
Your Unexpected Journey
Are you on an unexpected special needs journey, too? Do Amy’s words (and the title of the hobbit movie) resonate with you? Leave a comment about what you’ve been learning on the way.
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By Amy Stout
Amy Stout is a wife, mother, and free-lance writer. You can visit her website at His Treasured Princess.
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Love “The Unexpected Journey” phrase! And I also really admire and appreciate that your family “experiences autism.” My son is on the spectrum but does not yet have an official diagnosis. It used to drive me crazy but as time passes, I just ride the waves.
Visiting via Love that Max
Ruth! I LOVE what your daughter did!! Those bits and pieces of your son’s perspective are absolute treasures (as you well know!!). What thoughtful daughters you have – Those pieces of paper will be cherished forever!! What a gift they gave you!!
Ruth, what a keepsake that piece of paper is now. Good for you for viewing it as a way to “see how he thinks” and appreciate the way his mind works.
Jolene
Amy:
Nice post! Your thoughts on experiencing autism made me think of a little piece of paper I found the other day. Our daughters wrote down phrases our son said on vacation many years ago. This piece of paper is precious because it shows how he thinks and preceives things different than the rest of us. We all love reading them. They make all the rest of us smile.
Ruth Stieff