In a recent google alert, the words “special needs underground” caught my eye. What in the world is that? I wondered.
Praying for Parker
A click on the link took me to Praying for Parker, where my curiosity was satisfied. In her December 1, 2010 blog post, Parker’s mom Tammy defined the special needs underground (SNU) as a group ” of parents who are looking for medical supplies and parents who have medical supplies they no longer need.”
The Special Needs Underground Is Expanding
Tammy used it to to find affordable trach tubes for Parker when insurance refused. No doubt this kind of organization will become more necessary as governmental budget woes cause more cutbacks. That’s why Tammy is trying to start a SNU in Utah. To get the whole story, visit www.prayingforparker.com. You can also follow Parker’s story at www.5minutesforspecialneeds.com where Tammy is a regular contributor.
If you’re part of a special needs underground, please leave a comment about your experience. Or, share information about how parents can connect with SNGs around the country.
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Thanks for the tip, Kadiera! Let’s hope it helps parents connect and get what their kids need.
Jolene
There’s a pretty substantial presence of trach families on the formus at tracheostomy.com, and the supply swap board there gets a lot of use.
Many of the special needs groups on babycenter.com’s communities have a private swap board too.
@Jolene- wow small world! 🙂
Sure you can post it on your FB page. I see we’re from the same state. You’re in the Quad Cities, and I’m in the central part of the state. Maybe we’ll meet eachother someday!
Jolene
Hi Lynette,
I was thinking about you this morning, wondering how things were going. Sounds like your daughter’s making progress! Yahoo!
Jolene
this is awesome! now that our daughter is off the vent we have all kinds of supplys that we no longer use! i will definately be checking this out!!!
it will be great to pass onto other families!
thanks for this update!!!
found your post through Tammy’s blog. I’d like to post this on facebook- (I teach children with special needs) here’s the link for my facebook page- http://www.facebook.com/#!/pages/How-Long-is-this-Hall/184292024928301?v=wall
thanks for posting this! didn’t even know this existed…but makes perfect sense!