When You Know Too Much

by Sep 26, 2016Encouragement, Spiritual Support0 comments

When moms & dads know too much about special needs & disabilities, their joy as parents can be replaced by worry. These 4 strategies help them hang onto joy.

This summer our family embarked upon the grand adventure of multi-generational living. It began in May when our daughter, her husband, and their then 13-month-old son moved into our upstairs as they transition from starving graduate student status to starving artists status. The adventure is going well, everyone is adjusting, and my husband and I love sharing every day life with our grandson.

But sometimes, my joy is dimmed because I know too much.

What I know about special needs, disabilities, and childhood trauma gets in the way. When my grandson, now a robust 16 months old, running around on his tiptoes, a little voice inside me whispers, “That can be a symptom of autism.” When life gets very exciting and he flaps his chubby arms in delight, I think, “There’s another symptom.” When I compare his limited vocabulary to what my son and daughter, his mama, were saying at his age the voice whispers, “Perhaps he’ll be non-verbal.”

The whispers are a consequence of knowing too much.

Please understand. This little boy is extremely dexterous. His arm flapping doesn’t resemble the hand-flapping associated with autism. He speaks more clearly by the day, understands and follows verbal directions, loves interacting with people, and has a highly expressive face. He not only makes eye contact, but also craves it.

I worry anyway, because I know too much.

God has used what I have learned about and experience with special needs and disabilities to great good. He’s empowered me to write books to encourage and equip parents, to provide special needs ministry training, to facilitate support groups, and more. But sometimes that same knowledge and experience results in thought patterns that lead to excessive and obsessive worry that steals my joy. The kind of worrying that leads to doubt, to despair, and to sin. The kind of thinking familiar to far too many in the special needs and disabilities community. Maybe you’re familiar with it, too.

To read the rest of this post, visit Key Ministry’s Special Needs Parenting blog.

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By Jolene

Jolene Philo is the author of the Different Dream series for parents of kids with special needs. She speaks at parenting and special needs conferences around the country. She’s also the creator and host of the Different Dream website. Sharing Love Abundantly With Special Needs Families: The 5 Love Languages® for Parents Raising Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and at Amazon.

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Meet Jolene

Jolene Philo is a published author, speaker, wife, and mother of a son with special needs.

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