Holding It Together When Kids with Special Needs Don’t

by Mar 14, 2014Self-Care and Stress, Special Needs Parenting0 comments

Holding it together is tough when kids with special needs lose control. Kimberly Drew is learning about exercising self-control when her daughter can't.

Do you have a hard time controlling your emotions when your child with special needs is out of control? The good news is you’re not the only person in the club. The bad news is that the club is big. Really, really big. And one of the members of the club is guest blogger, Kimberly Drew. Today, she talks about what she and her husband do when their daughter can’t hold it together at bedtime.

Holding It Together

So, my pre-teen daughter has decided on a new nightly routine…crying at bedtime and throwing a tantrum. We went through a phase of this when she was about four years old, and I thought I was going to go insane during those months. Here we are again, only she’s not so little and adorable anymore. She’s feels like a giant when she’s straightening her body like a surfboard against my 5’4” frame. The truth is, I feel helpless. Basically, unless I am willing to lay down with her until she falls asleep, we will have to persevere through this phase until she figures out that bedtime is bedtime, no matter how big a fit she pitches!

Her behavior got me thinking about all the other times when we’ve felt frustrated by her lack of communication and ability to express feelings without having a massive melt down. There is always a little problem-solving involved, a lot of prayer, and occasionally a moment of clarity where it all makes sense. More often than not, these kinds of troubles are something that just has to be waited out. Answers to why our children are acting out don’t always come right away, and sometimes there is no reason at all. It’s hard to be patient, to wait out the storm, when it’s blowing in your face. But I do know that it always seems to pass. One way or another, it has a way of dissolving into a memory, and I realize that it wasn’t worth getting so upset over.

Being a parent to a child with special needs has so many challenges. One of those is learning to control our thoughts and emotions when situations are out of our control, and specifically when our children are acting out. We have to remember that it’s normal and expected for them to go through phases of being unsettled. While we may not be able to talk it through rationally with our children, or know that it’s not going to happen again, we have to remember that we are still the ones who set the emotional tone of our home.

We are the ones who have to hold it together when they are losing it.

I know my own nerves have been tested many times. I wish I could say that I have come out of each test with a smile on my face, and a calm and peaceful spirit. Unfortunately, sometimes I’m completely frustrated and exhausted and frazzled! But there have also been moments of grace filled patience. I strive to have more of those!

Any Advice for Kimberly?

Has your child gone through a phase similar to Kimberly’s daughter? How did you hold things together? Leave a comment for Kimberly and other parents who feel like they’re about to lose control. Thanks!

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Photo Credit: www.freedigitalphotos.net

By Kimberly Drew

Kimberly grew up and went to college in the small town of Upland, IN. She graduated from Taylor University with a degree in Elementary Education in 2002. While at TU, she married her college sweetheart and so began their adventure! Ryan and Kimberly have four amazing kids on earth (Abigail, Jayden, Ellie, and Cooper), and a baby boy waiting for them in heaven. Their daughter Abigail (Abbey) has multiple disabilities including cerebral palsy, a seizure disorder, hearing loss, microcephaly, and oral dysphagia. She is the inspiration behind Kimberly’s desire to write. In addition to being a stay-at-home mom, Kimberly has been serving alongside her husband in full time youth ministry for almost fourteen years. She enjoys working with the senior high girls, scrapbooking, reading, and music. You can visit Kimberly at her website, Promises and Perspective.

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Meet Jolene

Jolene Philo is a published author, speaker, wife, and mother of a son with special needs.

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