EA/TEF Awareness Month 2013 is almost over, but it can’t pass without a word from Christine Lester, a Different Dream blogger who’s son Billy was born with EA/TEF. Christine’s a little preoccupied with some exciting family developments these days, so she suggested using a lighthearted piece she wrote a couple years ago. The original list had thirty items, from which the following top ten items were gleaned.
Top Ten Signs You’re an EA/TEF Parent
- Your kid “barks or coughs” at the grocery store. So you’re either told you shouldn’t take such a sick child out, or little old ladies leave your line afraid of catching your kids “croup”….and that it’s much easier to agree that you’re a terrible parent bringing a sick child out, then to explain the real reason for the cough.
- Your child is not allowed to eat anything if you’re not in the room.
- You have done CPR on your child or in one way, shape or form saved your baby/child’s life. You have seen a “death spell” with your own eyes.
- You see your primary so often that he carries your child’s chart in his briefcase for fear of needing it and it being in another office.
- You PANIC sending your child to school, play dates, parties where you cannot monitor what your child may eat.
- You are an expert at dealing with the insurance company, fighting claims, getting referrals and reading EOB’s, getting the doctor’s appointment moved up.
- You know what NICU or PICU soap smells like, and you can still smell it if you close your eyes.
- You would take away all the sickness, surgeries, hospital test, doctor’s appointments if you could.
- Your cupboard or fridge looks like a pharmacy.
- You believe in miracles, because you live with one.
What Would You Add to the List?
To read Christine’s list in it’s entirety, visit You Might Be a Parent of an EA/TEF Child If, Part 1 and Part 2. Then come back here and leave a comment about your favorite item on Christine’s list. Or leave a comment about what you would add to the list. Thanks!
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