For parents with a prenatal diagnosis indicating a fatal birth defect, there are dozens of questions and no easy answers. If your unborn baby has received such news, I am so sorry. I have no answers for you, but hope this post and video will help your family in the difficult days ahead.
The Dallas Morning News site also provides a resource page about pediatric end of life care and tips for families. I’m not endorsing the organizations listed there, but if you are researching the topic, the page is a good place to begin.
Another organization, Perinatal Hospice, helps families with unborn children diagnosed with terminal conditions. The people who created the website and the organization know what you are going through. Some of them have walked the path you are on now and can help you in ways I cannot. They offer compassionate support, a wealth of experience, and lists of books and other resources for grieving parents.
Again, if you or someone you know recently received a prenatal diagnosis that could be terminal, I am so sorry. May these organizations and resources help your family make a thoughtful and loving decision. If you know of other support organizations, please contact me so I can list them on the DifferentDream.com resource page.
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